Today we had an appointment with the ENT for my buddy. We are so lucky that he hasn’t had any major health issues, yet still I find myself always at another doctor’s appointment. My buddy had some major fluid in is ears that was effecting his hearing. The fluid has subsided a lot and his hearing is almost back to normal. That leaves us with multiple visits to the ENT and audiologist.
Some days I find myself feeling bitter about Down syndrome. I love my buddy with every bit of my heart. I try and tell myself that Ds is a huge part of who he is and he wouldn’t be the same without that extra chromosome. But deep down, I don’t really believe myself and wish he didn’t have it.
I’ve been searching for books that explain what life is like for a mom with a child with Ds, but nothing has satisfied me. Perhaps 10 months isn’t long enough to get over the loss of who I thought he would be. I want to be that mom who inspires others and is happy that her child has Ds…. but does that really exist??
Some days I find myself feeling bitter about Down syndrome. I love my buddy with every bit of my heart. I try and tell myself that Ds is a huge part of who he is and he wouldn’t be the same without that extra chromosome. But deep down, I don’t really believe myself and wish he didn’t have it.
I’ve been searching for books that explain what life is like for a mom with a child with Ds, but nothing has satisfied me. Perhaps 10 months isn’t long enough to get over the loss of who I thought he would be. I want to be that mom who inspires others and is happy that her child has Ds…. but does that really exist??
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